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Sunday, January 10, 2010

Journey's Start 2009

Here is a question I have been asked, when did this all start? (When did you find out Carl had cancer? How did you find out Carl had cancer? etc.)

Sometimes you have been on a Journey for a while, and you didn't even realize it.
  • 1993 Carl rips leg muscle running the Dinosaur Dash in Milwaukee Wisconsin.
  • 1993-2008 Carl wears a compression band on leg to keep swelling and pain down.
  • 2009 summer Carl notices he's limping. Others notice too.
  • 2009 Late November Carl finally goes to see his Doctor. (I made the appointment and told Carl to cancel it if he wasn't going to keep it.
  • 2009 Early December Carl has an ultrasound done on his leg, the ultrasound result - have an MRI.
  • 2009 Dec 08, Tuesday:
    • 10:30 AM Carl had an MRI on his leg. Result - not good. See a surgeon ASAP.
    • Snowstorm that night.
  • 2009 Dec 09, Wednesday:
    • 1:30 PM Meeting with Surgeon
    • I think the bad weather helped us get in to see the surgeon this early, because patients had canceled due to weather (??).
    • 3:20 PM blood work
    • 3:30 PM Biopsy on leg.
    • Very cold weather continues...
  • 2009 Dec 10, Thursday:
    • 10:00 Carl had a CAT Scan
    • We got this appointment due to a cancellation due to the bad weather.
  • 2009 Dec 11, Friday:
    • 8:00 AM Carl had a bone scan.
    • We got this appointment due to a cancellation.
    • 1:00 PM Meeting with Surgeon
    • My journal has this note summarizing what I heard of what the Doctor said about Carl's health
    • "MAN U R SICK!"
  • 2009 Dec 12, Saturday:
    • We went to Breakfast with Santa.
    • On the way home, Carl's neck starts to hurt.
  • 2009 Dec 14, Monday:
    • 2:30 PM Meeting with Oncologist
    • Diagnosis: High grade Sarcoma with Epithelial Characteristics. Or something like that.
    • 4:45 PM Flu Shot and H1N1 shot
  • 2009 Dec 15, Tuesday:
    • Carl went to the dentist for a tooth cleaning totally unrelated to his leg.
    • That night, Miranda and Anthony preformed in a GREAT band concert.
  • 2009 Dec 16, Wednesday:
    • A cancer tumor board discussed Carl.
    • 8:00 AM Carl had an Electrocardiogram
    • 10:30 AM Meeting with Lung Surgeon
    • 12:30 PM Lab for Blood work
    • 1:30 PM Biopsy on a rib.
  • 2009 Dec 17, Thursday:
    • Carl went to work, didn't see any Doctors, and broke out in a rash.
  • 2009 Dec 18, Friday:
    • 11:00 AM Carl had a Pet Scan, the first scan head to toe.
    • 1:00 PM Meeting with Doctor. He said what is causing that rash?
    • Chemotherapy scheduled to start the Monday after Christmas.
    • And that weekend, Carl's Dad came in for a welcome visit.
  • 2009 Dec 22, Tuesday:
    • 11:00 AM Carl had a Port put in, for chemotherapy.
Carl Grisa
Photo above is Carl's Dad visiting Dec 18-20, 2009.

Photo above is Carl's Dad, Carl and the 4 children Dec 18-20, 2009.

Which brings us closer to Christmas.

But wait - a couple of plot twists are developing soon, so I will leave the Christmas Holidays for another post.

We are looking forward to the "Treat" in Treatments!


Mama Mayborne... said...

thanks for sharing. please let me know if i can do anything or if you just want to talk. i'm praying for you and your family!

Patrick Selep said...

Jeanne, This is really constructive. For my part at such a distance it is hard to know or even imagine what you are going through. This helps. I hope that it helps you as well to keep things all together. Keep adding to this. I think you will find it valuable on a number of levels.

suelmayer said...

Jeanne, Hang in there,I'm praying for you and your family too!!! Life has a way of taking some really unexpected turns...take it one day at a time.

marie norgal said...

hi jeanne,
started praying the minute i heard the news. putting carl on every prayer chain i know which includes the 800 kids at cmh. love you both so much. we will all help you get through this.

lorar said...

You know that we are thinking about Carl and praying for your entire family. I know how crazy life is with kids, and how challenging it can be when someone is ill.
Thanks for the updates.
We're with you all of the way!

Bridget said...

Crazy crazy. I'm glad you haven't lost your humor, dark though it may be. Sometimes that's all you can go on! Prayers coming to you from across the world. Bridget

Minnie Bhupathi said...

I cannot imagine what you must be going through!
I am so sorry I did not hear of this until recently.My thoughts and best wishes are with you and Carl.

HangingInThere said...

Update note: On 4-22-2011 I added the photos to this post.

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